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I wasn't going to say anything, but here it is.
Ilanah_ThanatosDate: Sunday, 01 Jan 2012, 4:35 PM | Message # 1
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Hey guys and gals,

To make a long story short (for those who get squeamish or just don't care), I am pretty sick. To the point where I am going to have to have some serious rounds of drug therapy and be on medication for the rest of my life. Worst case. Best case is that I just have to be on medication for the rest of my life, skipping the therapies.

It all started a couple months ago with some severe swelling in my leg. I had some tests, my doctor said not to worry about it. Well, I was worried because I couldn't get a shoe on at all, but she kept telling me that "it wasn't important". Ok. So I found a new doctor, and he sent me off for some tests and immediately sent me to a nephrologist, who specializes in kidney diseases. He says I have "some kind of auto immune disease", but he doesn't know which one yet because he needed to have a biopsy done of my kidneys to find out for sure. Basically, my immune system is attacking my kidneys, so he says. And they treat that with drugs, lots of drugs.

I went for the biopsy on Friday and let me tell you....it didn't hurt while they were doing it, but the pain has been pretty significant since. I should know something more definite in a few days as far as the treatments and stuff. It's been so long that the doc has no idea how bad it is or how bad it could be.

Why am I sharing this? It's not for sympathy, I tell you that. It's just in case I disappear for days or longer at a time. I've been informed that most, if not all, of the medications I could possibly be starting in the next week can really wreak havoc on a person. Emotionally and physically and all that. I'm really just freaked out and worried and I don't want to worry about this place too. Erik, of course, I trust to auto my chars if need be. If ya'll need me for something and haven't seen me in a few days, he's got a direct line to me (just in case...I know I am really not all that important in the grand scheme of things). I'm just setting provisions in place....just in case.

smile


Ilanah R. Thanatos
Senator of Chandrila


Message edited by Ilanah_Thanatos - Sunday, 01 Jan 2012, 4:38 PM
 
Fajra_MeravDate: Tuesday, 03 Jan 2012, 3:44 AM | Message # 2
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I hope everything works out. Take care.

xoxo


 
Ilanah_ThanatosDate: Thursday, 12 Jan 2012, 7:08 PM | Message # 3
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Thanks, Fajra <3

So here's the kinda good word.

The doctors office has had me on pins and needles all week...first by telling me that my results were delayed because they were sending everything to Cleveland Clinic for further analysis. That was scary. Then the phone call today: "Jessica....Doc wants to see you now. How soon can you get here?" I about had a meltdown there.

Basically it's what he thought....it's an auto immune disease called Focal segmental glomerulosclerosis (FSGS). I know, right? So my kidneys are pretty damaged and scarred because it's been going on longer than I thought because there weren't any physical symptoms.

I have twelve rather crappy weeks of immune suppressive drugs (prednisone) and hopefully that will just kick it in the rear. If not, we try another round of drugs. If that doesn't work....anyone want to give me a kidney? I kid, mostly. It won't come to that because these drugs are going to work.

So I apologize in advance if I am cranky or on edge. It's all the drugs. It's not a pretty thing to take. smile


Ilanah R. Thanatos
Senator of Chandrila
 
HavocDate: Friday, 13 Jan 2012, 2:45 PM | Message # 4
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Tell you what...

You come down to Doctor Havoc's clinic on butcher and blood rd, I'll call in for a good word for you, and get you back to new in a few days. Just ask Baird! He used my... I mean, his services. And since then, you'd swear he was a white man!


 
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